This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to illustrate the fruits of the methods. In doing so, the book covers a range of physical, sensory, and cognitive impairments. This work resonates with themes in disability studies such as emancipatory research, which views research as a collaborative effort with research subjects whose lives are enhanced by the process and results of the work. It is a methodological approach that requires researchers to be on guard against exploiting informants for the purpose of professional aggrandizement and to engage in a process of ongoing self-reflection to clear themselves of personal and professional biases that may interfere with their ability to hear and empathize with others.
This path-breaking book analyses the experiences of young sporting women with physical impairments. Taking phenomenology as a point of departure, Elisabet Apelmo explores how the young women handle living with a body which, on the one hand, is viewed as deviant – the disabled body – and on the other hand is viewed as accomplished – the sporting body. A polarization is apparent between the weak, which is manifested through the expression of belonging as "we", and the strong individual. The subject position as strong, positive and capable – as a reaction towards the weak, the negative – is one of the few positions that are available to them. Furthermore, the book demonstrates the strategies of resistance the young women develop against the marginalisation, stereotyping and othering they experience in their everyday lives. Finally, the author discusses the paradox of gender. Disabled bodies are often seen as non-gendered, however, these young women’s experiences are structured by both the gender regimes within sports and the larger gender order of the society.
What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disability explores how popular culture texts, such as Degrassi: The Next Generation and Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representations of disability reveal their nondisabled producers to be perpetually anxious subjects, doomed to fear not just the disabled subject but the very reality of disability lurking within. Situated at the nexus of disability studies, media studies and psychology, this text presents an innovative way of analyzing representations of disability in popular culture, inverting the psychoanalytic gaze back upon the nondisabled to investigate how disability can become a lens through which to interrogate the normate subject.
In several branches of social science, interest in values and moral evaluations has increased in recent years, with group values taking centre-stage, yet a satisfactory, theoretical account of the concept of values and their role in social life remains lacking. Engaging with theories of value formation and the role of values in everyday life found in ethics, classical sociology and contemporary social theory and their implications for empirical work, Researching Values with Qualitative Methods argues for a pragmatist approach both to understanding values and the manner in which they are formed, as well as exploring the ways in which they can be studied empirically, using qualitative research methods. In this way, this book promises to resolve many of the practical problems involved in fieldwork with political groups, including the prominent question of how to account for the researcher's own values. Illustrated with examples from published as well as new research, this book provides the foundation for the theoretical understanding of values and their empirical investigation, thus strengthening the connection between social theory and the development of research methods. As such, it will be of interest to sociologists, anthropologists and geographers with interests in values, social theory and research methodology.
Challenging notions of what constitutes 'normal' and 'pathological' bodies, this ambitious, agenda-setting study theoretically reinvigorates disability studies by reconceptualising it as 'studies of ableism' focusing on the practices and formations of able-bodiedness to uncover what it means to be 'able' rather than 'disabled'.
How design for disabled people and mainstream design could inspire, provoke, and radically change each other.
Disability, Augmentative Communication, and the American Dream is a collaborative effort to tell the life story of Jon A. Feucht, a man who was born with a form of cerebral palsy that left him reliant on a wheelchair for mobility, with limited use of his arms and an inability to speak without an assistive communication device. It is a story about finding one’s voice, about defying low expectations, about fulfilling one’s dreams, and about making a difference in the world. Sociologist C. Wright Mills famously called for a “sociological imagination” that grapples with the intersection of biography and history in society and the ways in which personal troubles are related to public issues. Disability, Augmentative Communication, and the American Dream heeds this call through a qualitative “mixed–methods” study that situates Feucht’s life in broader social context, understanding disability not just as an individual experience but also as a social phenomenon. In the tradition of disability studies, it also illuminates an experience of disability that avoids reading it as tragic or pitiable. Disability, Augmentative Communication, and the American Dream is intended as an analytical and empirical contribution to both disability studies and qualitative sociology, to be read by social science scholars and students taking courses in disability studies and qualitative research, as well as by professionals working in the fields of special education and speech pathology. Written in an accessible style, the book will also be of interest to lay readers who want to learn more about disability issues and the disability experience.
Ronald Berger provides students with a comprehensive, accessible introduction to the key themes and controversies in disability studies. This innovative textbook: ¿ provides historical context, from ancient times to the present ¿ traces disability¿s impact throughout the life course ¿ gives prominence to the voices of people with disabilities ¿ explores popular culture¿s role in distorting ideas about disability ¿ addresses emerging ethical issues, such as the implications of genetic selection Illustrating the profound consequences of differing conceptions of physical, sensory, and cognitive impairments, Berger provides a solid foundation for making sense of disability as a social phenomenon.
One of the greatest challenges facing modern global health is how to include the most marginalized and impoverished people in international efforts to promote social and economic development. In Disability and International Development disability rights are situated within the broader context of global health and the need for much greater inter-sector collaboration. Reports from a broad cross-section of low- and middle-income countries—locales as diverse as Zimbabwe, Bolivia, Kyrgyzstan, and Papua New Guinea—move beyond surface discussions of "what is working" and "what shows promise" to discuss political and governance contexts, the roles of disabled persons in research by outsiders, concurrent struggles (e.g., women’s or children’s rights), and instructive inroads made by community activists and national Disabled People’s Organizations. The results are provocative, and offer new lenses for viewing both the issues and the populations they affect. Each of the book’s chapters spotlights a topic as representative of the enormity and immediacy of challenges to inclusive global health, including: The impact of international human rights law on domestic law and local traditions. The effect of failed states on the lives of people with disabilities. Empowerment and advocacy: disability organizations and movements. HIV/AIDS interventions with disabled persons. Assistive technologies in low-income countries. Strategies for improving the lives of children with disabilities. Cross-disciplinary as well as cross-cultural, Disability and International Development will attract a wide audience of professionals in rehabilitation, social welfare and human rights; governmental and non-governmental organizations and disabled people’s organizations; researchers and practitioners. It will also be relevant to those working in health and welfare administration, health policy, international aid and development, and human rights. In addition, graduate students in disability studies, public and global health and international development should find this an important guide to the future of these fields.
In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.
This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, gender and sexuality Disability, religion and customary societies and practices The UNCRPD, disability rights orientations and instrumentalities Redistributive systems including budgeting, cash transfer systems and programming. Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.
Melvin Juette has said that becoming paralyzed in a shooting was "both the worst and best thing that happened" to him. This memoir re-constructs the defining moments of his life with the assistance of sociologist Ronald Berger. It is bracketed by Berger's introduction and conclusion, which places this narrative in proper sociological context.
Transforming Scholarship is a user-friendly work of practical guidance and inspiration for supporting a student's interest in a Women's Studies degree. Berger and Radeloff use empirical evidence to help students with the major barriers they face when exploring Women's Studies: the negative response a student often faces when announcing to the world that he or she is interested in Women’s Studies; and the perceived lack of employment and career options that supposedly comes with graduating with a Women's Studies degree. This book will support students to think critically about what they know, how to demonstrate what they know, and how to prepare for life both personally and professionally after the degree. Transforming Scholarship is a practical guide for students interested in women’s and gender studies that targets advanced undergraduates who have a firm connection to the discipline. This book is ideal for women’s and gender capstone courses, and for those who have finished their degree and need a resource to assist in conceptualizing the answers to the question "What’s next?" This second edition of Transforming Scholarship focuses on areas that undergraduates might want integrate into their women’s and gender studies education: study abroad, civic engagement projects, internships, independent studies, and honors theses. It includes exercises to help flesh out talents, passions, and skills, and how to link them to employment, information about the diversity of employment opportunities (and further professional training) available, and a plan to help prepare for graduation. It also delves into how to live a feminist life after graduation, including activism after college, building and sustaining feminist communities, and feminist parenting. The authors have also added new "Point of View" boxes throughout the book, where scholars focus on contemporary issues and deepen a student’s understanding of the organizations and individuals fighting to end sexist oppression.
"Although millions of people are affected each year by brain injuries, what it is like to live with these injuries is often misunderstood. Laura Lorenz delves into the experience of acquired brain injury (ABI) survivors to reveal how they make sense of their changed circumstances - and how social policies and medical expectations can enhance, or detract from, their quality of life." "As she traces individual journeys on the road from diagnosis through rehabilitation, Lorenz evokes the reality of living with ABI. She also tackles the systemic problems undercutting the quality of current medical and social support. Moving beyond ABI, her work encourages a fresh approach to the patient-provider relationship for people with a wide range of disabilities." --Book Jacket.
The Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and consisting entirely of newly commissioned chapters arranged thematically, it surveys the state of the discipline, examining emerging and cutting edge areas as well as core areas of contention. Divided in five sections, this comprehensive handbook covers: different models and approaches to disability how key impairment groups have engaged with disability studies and the writings within the discipline policy and legislation responses to disability studies and to disability activism disability studies and its interaction with other disciplines, such as history, philosophy and science and technology studies disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work.
This collection offers first-hand accounts, research studies and in-depth theoretical explorations of disabled children's childhoods. The accounts oppose the global imposition of problematic views of disability and childhood and instead, offer an open discussion of responsive and ethical research approaches.
Examines how civil rights legislation impacts the lives of ordinary Americans, drawing on the experiences of sixty interviewees that have been victims of discrimination to discuss how civil rights impacted their lives.
This is the first book to explore the interplay of disability, gender and violence over the life course from researcher, practitioner and survivor perspectives. It gives due weight to the accounts of disabled children and adults who have survived institutional or individual violence, evidencing barriers to recognition, disclosure and reporting. Written by disabled and non-disabled women from around the world, Disability, Gender and Violence over the Life Course addresses the dearth of voices and experiences of disabled women and girls in empirical research, policy and practice on issues of violence, victimisation, protection, support and prevention. Divided into three parts – Childhood, Adulthood and Older Life – this collection offers diverse perspectives on the intersectionality of disability, age, ethnicity, sexuality and violence that have hitherto been absent. This book will be an invaluable resource for students and practitioners of multiple fields of practice and academic studies, including health and social care, nursing, social work, childhood studies, gender studies, disability studies, safeguarding and child protection, equality and human rights, sociology and criminology.
This exciting new book is about the narrative turn in sociology, an approach that views lived experience as constructed, at least in part, by the stories that people tell about it. The book is organized around four themes family and place, the body, education and work, and the passage of time that tell a story about the life course and touch on a wide range of enduring sociological topics. The first chapter explores some of the theories of narrative that mark contemporary social analysis. Introductions to the four sections identify the narrative style and sociological themes that the essays reflect. The heart of the book, however, is not about narrative but of narrative: scholars who have been involved in class, racial/ethnic, gender, sexual orientation, and disability studies compellingly write about their own life experiences.
From public transportation and education to adequate access to buildings, the social impact of disability has been felt everywhere since the passage of the Americans with Disabilities Act in 1990. And a remarkable groundswell of activism and critical literature has followed in this wake. Claiming Disability is the first comprehensive examination of Disability Studies as a field of inquiry. Disability Studies is not simply about the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing but the meaning we make of those variations. With vivid imagery and numerous examples, Simi Linton explores the divisions society creates—the normal versus the pathological, the competent citizen versus the ward of the state. Map and manifesto, Claiming Disability overturns medicalized versions of disability and establishes disabled people and their allies as the rightful claimants to this territory.