This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to illustrate the fruits of the methods. In doing so, the book covers a range of physical, sensory, and cognitive impairments. This work resonates with themes in disability studies such as emancipatory research, which views research as a collaborative effort with research subjects whose lives are enhanced by the process and results of the work. It is a methodological approach that requires researchers to be on guard against exploiting informants for the purpose of professional aggrandizement and to engage in a process of ongoing self-reflection to clear themselves of personal and professional biases that may interfere with their ability to hear and empathize with others.
This is the first book of its kind to feature interdisciplinary art history and disability studies scholarship. Art historians have traditionally written about images of figures with impairments and artworks by disabled artists, without integrating disability studies scholarship, while many disability studies scholars discuss works of art, but do not necessarily incorporate art historical research and methodology. The chapters in this volume emphasize a shift away from the medical model of disability that is often scrutinized in art history by considering the social model and representations of disabled figures from a range of styles and periods, mostly from the twentieth century. Topics addressed include visible versus invisible impairments; scientific, anthropological, and vernacular images of disability; and the theories and implications of looking/staring versus gazing. They also explore ways in which art responds to, envisions, and at times stereotypes and pathologizes disability. The insights offered in this book contextualize understanding of disability historically, as well as in terms of medicine, literature, and visual culture.
This book provides the reader with a ground-breaking understanding of disability and social movements. By describing how disability is philosophically, historically, and theoretically positioned, Carling-Jenkins is able to then examine disability relationally through an evaluation of the contributions of groups engaged in similar human rights struggles. The book locates disability rights as a new social movement and provides an explanation for why disability has been divided rather than united in Australia. Finally, it investigates whether the recent campaign to implement a national disability insurance scheme represents a re-emergence of the movement. It will be of interest to all scholars and students of both disability studies and social movements.
In several branches of social science, interest in values and moral evaluations has increased in recent years, with group values taking centre-stage, yet a satisfactory, theoretical account of the concept of values and their role in social life remains lacking. Engaging with theories of value formation and the role of values in everyday life found in ethics, classical sociology and contemporary social theory and their implications for empirical work, Researching Values with Qualitative Methods argues for a pragmatist approach both to understanding values and the manner in which they are formed, as well as exploring the ways in which they can be studied empirically, using qualitative research methods. In this way, this book promises to resolve many of the practical problems involved in fieldwork with political groups, including the prominent question of how to account for the researcher's own values. Illustrated with examples from published as well as new research, this book provides the foundation for the theoretical understanding of values and their empirical investigation, thus strengthening the connection between social theory and the development of research methods. As such, it will be of interest to sociologists, anthropologists and geographers with interests in values, social theory and research methodology.
Research has long substantiated the fact that living with a disability creates significant and complex challenges to identity negotiation, the practice of communication, and the development of interpersonal relationships. Furthermore, individuals without disabilities often lack the knowledge and tools to experience self-efficacy in communicating with their differently-abled peers. So how do these challenges translate to the incorporation of disability studies in a classroom context and the need to foster an inclusive environment for differently-abled students? Bringing together a range of perspectives from communication and disability studies scholars, this collection provides a theoretical foundation along with practical solutions for the inclusion of disability studies within the everyday curriculum. It examines a variety of aspects of communication studies including interpersonal, intercultural, health, political and business communication as well as ethics, gender and public speaking, offering case study examples and pedagogical strategies as to the best way to approach the subject of disability in education. It will be of interest to students, researchers and educators in communication and disability studies as well as scholars of sociology and social policy, gender studies, public health and pedagogy. It will also appeal to anyone who has wondered how to bring about a greater degree of inclusion and ethics within the classroom.
"Disability, like questions of race, gender, and class, is one of the most provocative topics among theorists and philosophers today. This volume, situated at the intersection of feminist theory and disability studies, addresses questions about the nature of embodiment, the meaning of disability, the impact of public policy on those who have been labeled disabled, and how we define the norms of mental and physical ability. The essays here bridge the gap between theory and activism by illuminating structures of power and showing how historical and cultural perceptions of the human body have been informed by and contributed to the oppression of women and disabled people."--Pub. desc.
This groundbreaking volume brings together major figures in Disability Studies in Education (DSE) and Critical Race Theory (CRT) to explore some of todays most important issues in education. Scholars examine the achievement/opportunity gaps from both historical and contemporary perspectives, as well as the overrepresentation of minority students in special education and the school-to-prison pipeline. Chapters also address school reform and the impact on students based on race, class, and dis/ability and the capacity of law and policy to include (and exclude). Readers will discover how some students are included (and excluded) within schools and society, why some citizens are afforded expanded (or limited) opportunities in life, and who moves up in the world and who is trapped at the bottom of the well. Contributors: D.L. Adams, Susan Baglieri, Stephen J. Ball, Alicia Broderick, Kathleen M. Collins, Nirmala Erevelles, Edward Fergus, Zanita E. Fenton, David Gillborn, Kris Guitiérrez, Kathleen A. King Thorius, Elizabeth Kozleski, Zeus Leonardo, Claustina Mahon-Reynolds, Elizabeth Mendoza, Christina Paguyo, Laurence Parker, Nicola Rollock, Paolo Tan, Sally Tomlinson, and Carol Vincent With a stunning set of authors, this book provokes outrage and possibility at the rich intersection of critical race, class, and disability studies, refracting back on educational policy and practices, inequities and exclusions but marking also spaces for solidarities. This volume is a must-read for preservice, and long-term educators, as the fault lines of race, (dis)ability, and class meet in the belly of educational reform movements and educational justice struggles. Michelle Fine, distinguished professor of Critical Psychology and Urban Education, The Graduate Center, CUNY Offers those who sincerely seek to better understand the complexity of the intersection of race/ethnicity, dis/ability, social class, and gender a stimulating read that sheds new light on the root of some of our long-standing societal and educational inequities. Wanda J. Blanchett, distinguished professor and dean, Rutgers University, Graduate School of Education
This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, gender and sexuality Disability, religion and customary societies and practices The UNCRPD, disability rights orientations and instrumentalities Redistributive systems including budgeting, cash transfer systems and programming. Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.
This path-breaking Handbook of Disability Studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. The Handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability
Melvin Juette has said that becoming paralyzed in a shooting was "both the worst and best thing that happened" to him. This memoir re-constructs the defining moments of his life with the assistance of sociologist Ronald Berger. It is bracketed by Berger's introduction and conclusion, which places this narrative in proper sociological context.
In Disability, Augmentative Communication, and the American Dream the authors use a qualitative “mixed methods” study framed by analytical insights from disability studies to show how disability is not just an individual experience but a social phenomenon. The book focuses on the life story of Jon Feucht, a man who was born with a form of cerebral palsy that left him impaired in his lower and upper body and unable to speak without the use of an assistive communication device. He eventually overcame all odds and achieved academic success, and is currently a doctoral candidate in education leadership and policy.
Ronald Berger provides students with a comprehensive, accessible introduction to the key themes and controversies in disability studies. This innovative textbook: ¿ provides historical context, from ancient times to the present ¿ traces disability¿s impact throughout the life course ¿ gives prominence to the voices of people with disabilities ¿ explores popular culture¿s role in distorting ideas about disability ¿ addresses emerging ethical issues, such as the implications of genetic selection Illustrating the profound consequences of differing conceptions of physical, sensory, and cognitive impairments, Berger provides a solid foundation for making sense of disability as a social phenomenon.
Examines how civil rights legislation impacts the lives of ordinary Americans, drawing on the experiences of sixty interviewees that have been victims of discrimination to discuss how civil rights impacted their lives.
How design for disabled people and mainstream design could inspire, provoke, and radically change each other.
In this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project – dis/ability studies – an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framework to a range of critical topics, including: The biopolitics of dis/ability and debility Inclusive education Psychopathology Markets, communities and civil society. Dis/ability Studies provides much needed depth, texture and analysis in this emerging discipline. This accessible text will appeal to students and researchers of disability across a range of disciplines, as well as disability activists, policymakers, and practitioners working directly with disabled people.
This exciting new book is about the narrative turn in sociology, an approach that views lived experience as constructed, at least in part, by the stories that people tell about it. The book is organized around four themes family and place, the body, education and work, and the passage of time that tell a story about the life course and touch on a wide range of enduring sociological topics. The first chapter explores some of the theories of narrative that mark contemporary social analysis. Introductions to the four sections identify the narrative style and sociological themes that the essays reflect. The heart of the book, however, is not about narrative but of narrative: scholars who have been involved in class, racial/ethnic, gender, sexual orientation, and disability studies compellingly write about their own life experiences.
One of the greatest challenges facing modern global health is how to include the most marginalized and impoverished people in international efforts to promote social and economic development. In Disability and International Development disability rights are situated within the broader context of global health and the need for much greater inter-sector collaboration. Reports from a broad cross-section of low- and middle-income countries—locales as diverse as Zimbabwe, Bolivia, Kyrgyzstan, and Papua New Guinea—move beyond surface discussions of "what is working" and "what shows promise" to discuss political and governance contexts, the roles of disabled persons in research by outsiders, concurrent struggles (e.g., women’s or children’s rights), and instructive inroads made by community activists and national Disabled People’s Organizations. The results are provocative, and offer new lenses for viewing both the issues and the populations they affect. Each of the book’s chapters spotlights a topic as representative of the enormity and immediacy of challenges to inclusive global health, including: The impact of international human rights law on domestic law and local traditions. The effect of failed states on the lives of people with disabilities. Empowerment and advocacy: disability organizations and movements. HIV/AIDS interventions with disabled persons. Assistive technologies in low-income countries. Strategies for improving the lives of children with disabilities. Cross-disciplinary as well as cross-cultural, Disability and International Development will attract a wide audience of professionals in rehabilitation, social welfare and human rights; governmental and non-governmental organizations and disabled people’s organizations; researchers and practitioners. It will also be relevant to those working in health and welfare administration, health policy, international aid and development, and human rights. In addition, graduate students in disability studies, public and global health and international development should find this an important guide to the future of these fields.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader’s tradition of remaining timely, urgent, and critical.
This book explores the concept of "occupation" in disability well beyond traditional clinical formulations of disability: it considers disability not in terms of pathology or impairment, but as a range of unique social identities and experiences that are shaped by visible or invisible diagnoses/impairments, socio-cultural perceptions and environmental barriers and offers innovative ideas on how to apply theoretical training to real world contexts. Inspired by disability justice and “Disability Occupy Wall Street / Decolonize Disability” movements in the US and related movements abroad, this book builds on politically engaged critical approaches to disability that intersect occupational therapy, disability studies and anthropology. "Occupying Disability" will provide a discursive space where the concepts of disability, culture and occupation meet critical theory, activism and the creative arts. The concept of “occupation” is intentionally a moving target in this book. Some chapters discuss occupying spaces as a form of protest or alternatively, protesting against territorial occupations. Others present occupations as framed or problematized within the fields of occupational therapy and occupational science and anthropology as engagement in meaningful activities. The contributing authors come from a variety of professional, academic and activist backgrounds to include perspectives from theory, practice and experiences of disability. Emergent themes include: all the permutations of the concept of "occupy," disability justice/decolonization, marginalization and minoritization, technology, struggle, creativity and change. This book will engage clinicians, social scientists, activists and artists in dialogues about disability as a theoretical construct and lived experience.
Presenting a cartographic journey into the world of the production(s) of disability, this book examines embodiment, transhumanism, subjectivity, technology and jurisprudence. It concerns matters of order/disorder and the normal and pathological, and explores the way stories about wholeness, health, enhancement and perfection are told.